Whether it is at church, on a playset or coming home from school, Lily-Rae lacks the ability to be independently mobile. At age 4, Kathryn still helps Lily-Rae do the things she wants by carrying her in her arms, wheeling her in a stroller or placing her in her wheelchair. “She is so strong. She’s able to be happy, even though she is battling this condition. She just inspires me so much. And I love her. She has changed me,” Kathryn said.

